We’ve had a request come through to help a 3yr old boy from Whitefield with complex Hunters Syndrome, also known as MPS11. This is a progressive disorder involving every cell in the body, it is also life limiting. Treatment for this condition is a weekly infusion intravenously of a special drug, which is a recombinant form of the missing enzyme.
Ronnie attends a special nursery a couple of days a week and has the use of their sensory room. He responds well to light and sound. His doctors feel having some sensory equipment at home would benefit him. His young parents are not in a position to be able to afford this so I’ve just placed an order for some sensory equipment to enable them to have a little sensory room at home for Ronnie.
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Upcoming EventsApr 22 Sun1:30 pm St Georges Day Afternoon Tea in memory of Margaret FrostSt Georges Day Afternoon Tea in …Apr 22 @ 1:30 pm – 4:00 pmThis annual event will once again take place at the Park Lane Suites in memory of Margaret Frost, the inspiration behind the Frost Foundation. Help [...]May 12 SatJun 21 ThuJul 17 Tue12:30 pm Fred Frost Memorial Golf Day @ Northenden Golf ClubFred Frost Memorial Golf Day @ Northenden Golf ClubJul 17 @ 12:30 pm – 9:00 pmCalling all golfers - the annual Frost Foundation golf day will once again take place at Northenden Golf Club with this years event be held [...]
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